Visions: The Inspirational Journeys of Epilepsy Advocates

Front Cover
Linda Sudlesky, Steven C. Schachter
Oxford University Press, Jan 20, 2020 - Medical - 372 pages
Visions: The Inspirational Journeys of Epilepsy Advocates contains the stories of 50 people who have answered the call to advocate on behalf of those with epilepsy. They are people with epilepsy or members of their community, motivated to make a positive impact through education and awareness, empowerment, fundraising, healthcare and research, and organizational advocacy. Shining a light on well-known issues as well as rare forms of epilepsy and SUDEP (Sudden Unexpected Death in Epilepsy), these advocates depict their journeys through both prose and photographs. Along with stories that depict the advocates' journeys, photographs show these advocates and their work in action. Visions: The Inspirational Journeys of Epilepsy Advocates empowers people affected by epilepsy and inspires continued advocacy for what has been a misunderstood and underfunded neurological disorder.
 

Contents

Education and Awareness
1
Empowerment
39
FUNDRAISING
65
HEALTHCARE AND RESEARCH
87
ORGANIZATIONAL ADVOCACY
153
RARE FORMS OF EPILEPSY
232
SPORTSATHLETICS
269
SUDDEN UNEXPECTED DEATH IN EPILEPSY
283
WRITING AND ARTS
309
Conclusion
337
Glossary
339
Index
343
Copyright

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About the author (2020)


Linda Sudlesky is an Instructional Designer at the University of Massachusetts Boston, an artist, an advocate, and a person with epilepsy. She also works as a community support staff and advocate for people with intellectual disabilities. She has done community education on epilepsy, serves as a volunteer for Citizens United for Research in Epilepsy (CURE) and as a committee member for 1:26 Art of Epilepsy, Boston.

Dr. Steven Schachter is the Chief Academic Officer for the Consortia for Improving Medicine with Innovation & Technology (CIMIT) and a Professor of Neurology at Harvard Medical School. He has published over 250 articles and chapters and edited or written 35 books. He is the founding editor and editor-in-chief of the medical journals Epilepsy & Behavior and Epilepsy & Behavior Case Reports.

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